We had a wonderful event for RED this year. My sisters, Paula and Iris, and my
nieces, Beth and Sandi, were here from Atlanta, and many of my friends joined
the Doorways family to net about $250k for housing services for people living
with AIDS. This money allows us to leverage $5-6 million of other funding to
assist 700 households, including their 300 children, with housing in which they
can best manage their illness. The photo of roses which accompanies this
paragraph are a gift to me from the Doorways board and staff for my 25 years of
service to the organization.
I am also including a photo of my new medicine. This paragraph describes my medical situation for some of the folks who are asking for a little more detail. I have had some problems with a growing blood clot, and, well, you can read it here!
Fondaparinux Sodium Solution is what they replaced the Lovinex with when they found the blood clot had grown into the Atrium of the heart. It is just one shot a day subq.
I am also including a photo of my new medicine. This paragraph describes my medical situation for some of the folks who are asking for a little more detail. I have had some problems with a growing blood clot, and, well, you can read it here!
Fondaparinux Sodium Solution is what they replaced the Lovinex with when they found the blood clot had grown into the Atrium of the heart. It is just one shot a day subq.
Today I started chemo
with Abraxane. I am off the gemcitavin (sp?) because it wipes out my platelets
and causes a bunch of other nuisance stuff. They will retest the clot in one
month. Probably retest the tumor and mets in 2 months. By the way, the tumor is
about the same. The mets have increased a little and two of them have merged.
My liver enzymes are still good as are the other labs. The splenic vein is
occluded, but lots of others that could be affected are open.
They want to try to qualify me for the vaccine trial, but having a new blood clot within the last 2 months excludes me. It is possible that if I don't get another clot I can go on it later.
I am restricted from
working out, but I can walk up to a heart rate of 120. I am still doing TaiChi.
I was going to go to a Chinese herbalist, but the oncologist wants me to hold off. She is Chinese and open to the therapy, but says they use combinations of 40 or more herbs and it is hard to determine which one is the problem if there is a conflict with the other drugs I am taking.
Thanks for your support! XOXO
Lynne
P.S. By the way, if you are following the birthing center project, Murph and Mary Sue have put up a new website at maternityclinicgulu.com
Check it out!
